Achondroplasia

• Human Growth Foundation
• Little People of America (LPA)

Arthritis

• The Magic Foundation for Children’s Growth and Related Adult Disorders
• Short Stature Foundation

Behavioral Conditions

• Behavioral Pediatrics Clinic
• ADHD Pediatric Clinic

Bereavement

• M.E.N.D Mommies Enduring Neonatal Death
• Compassionate Friends

Bleeding Disorders

• National Hemophilia Foundation
• Hemophilia Treatment Center

Brain Tumor

• Brain Tumor Support Group

Cancer

• Candlelighters Childhood Cancer Foundation

Cleft Lip/Palate

• Cleft Palate Foundation
• Wide Smiles

Cystic Fibrosis

• UIHC Cystic Fibrosis Center
• National Cystic Fibrosis Foundation
• Cystic Fibrosis Foundation Iowa Chapter

Diabetes

• American Diabetes Association
• Quad Cities Juvenile Diabetes Association
• Juvenile Diabetes Research Foundation

Down's Syndrome

• National Down Syndrome Society
• Down Syndrome Clinic
• Association for Children with Down Syndrome

Ehlers-Danlos

• Ehlers-Danlos National Foundation

Epilepsy

• Epilepsy Foundation

Fragile X

• The National Fragile X Foundation

Gluten Intolerance

• Gluten Intolerance Group of North America

Growth Disorders

• Magic Foundation
• Human Growth Foundation
• Turner's Syndrome Society of the US

Hearing Loss

• National Association of the Deaf

Heart Conditions

• Second Chance
• Heart Friends

Huntington’s Disease

• Huntington’s Disease Society of America
• National Institute of Neurological Disorders and Stroke

Marfan

• National Marfan Foundation

Neurofibromatosis

• The National Neurofibromatosis Foundation, Inc.
• Pathways Awareness Foundation

Osteogenesis

• Osteogenesis Imperfecta Foundation, Inc.

Prader-Willi

• Prader-Willi Syndrome

• National Spina Bifida
• Spina Bifida of Iowa

Support in general

• Child Health Specialty Clinic
• Make A Wish Foundation
• Sunshine Foundation

Trisomy 18 and 13

• SOFT

Tuberous Sclerosis

• Tuberous Sclerosis Alliance

Turner Syndrome

• The Turner Syndrome Society of the United States

Miscellaneous 

• Chromosome Deletion Outreach
• Genetic Alliance, Inc.
• March of Dimes Resource Center
• NORD National Organization of Rare Disorders
• Support Groups for Chromosomal Conditions